A UVA Department of Neurology Research Opportunity
WHO Can Participate?
Caregivers of and persons with memory problems and a history of Traumatic Brain Injury (TBI) are eligible to participate.
WHAT Does the Study Involve?
Participants will be randomized (like a flip of a coin) to one of two groups. Both groups will be assigned a Clinical Care Coordinator (CCC) for one year. The only difference between the groups is when you start in the program.
- Care Coordination Group – Participants randomized to this group will be assigned a CCC immediately.
- Best Medical Treatment Group – Participants randomized to this group will receive care from their current health team as normal. After one year (12 months) participants will be assigned a CCC.
The Clinical Care Coordinators work with caregivers to provide support, resources, and education. CCCs meet with caregivers at least once a month to address concerns and find solutions to caregiving problems.
Caregivers will complete a series of questionnaires online up to 4 times over the course of the study.
WHERE Does the Study Take Place?
All study visits happen over telehealth (on the computer or the phone). No additional visits to the clinic are needed. How long does the study last? The study lasts up to 2.5 years. This includes a 6-month follow-up after the end of CCCs services.
Why should you participate?
Possible benefits of participating include:
- Emotional support
- Assistance with long-term care planning
- Easier coordination of clinical care
- Education on memory problems and TBI
- Reduced stress and improved mood
- Improved quality of life
There is no cost to participate.
INTERESTED in Participating?
Contact Anna Arp
► Research Study Flyer